The last day of February has been designated “Rare Disease Day” to promote education and awareness related to rare diseases. More than 90 nations participate in this global observance, which was first established in 2008. In 2017, Rare Disease Day is February 28.
The National Organization for Rare Disorders (NORD) encourages medical professionals and students to host educational events such as lobby displays, Grand Rounds, educational community forums, and other activities focusing on rare diseases around that time.
NORD can provide patient/caregiver speakers, medical expert speakers, literature, and other resources to support Rare Disease Day events. In addition, NORD can help publicize and promote awareness of events. As the national sponsor of Rare Disease Day in the US, NORD hosts the national website at www.RareDiseaseDay.US where events can be posted state-by-state.
For information or support related to Rare Disease Day hospital or academic center events, write to education@rarediseases.org. Fact sheets and a toolkit specifically for those organizing Rare Disease Day events in hospital or academic settings are available for free download on the Rare Disease Day US website.